Your Child Was Just Diagnosed

Your child has just been diagnosed with neuroblastoma. The information will be overwhelming. The best thing to do is ask questions. Write them down and keep them in a notebook that you carry with you. These questions can help you decide what treatment plan is best for your child.

Can You Tell Me About Neuroblastoma?

  • What is the stage of my child’s cancer and where in the body is it? Has it metastasized?
  • What is the survival rate for children with my child’s stage of disease?
  • Is there anything unique about my child’s cancer that makes their prognosis better or worse?
  • Can I get copies of all test results?
  • Should I get a second opinion?

What About Treatment?

  • What are my child’s treatment options?
  • Will my child be part of a clinical trial? If so, what phase is it?
  • Is this hospital the best choice for treatment?
  • How long is the treatment plan?
  • How many children have been treated on this protocol?
  • Can you give me a detailed outline and schedule for my child’s treatment plan?
  • What is the goal of treatment? To cure the cancer or stop it from growing?
  • How and when will I be able to tell if treatment is working?
  • Will my child be getting a broviac or a port?
  • Are there any natural or homeopathic medicines we can use?
  • If this were your own child, what would you do and why?
  • Should I talk to my insurance company about what is covered and what payment options are available?

And The Doctors?

  • Which specific doctors at this center will treat my child? Which doctor is primarily responsible for my child’s care?
  • How many patients have your treated with my child’s diagnosis?
  • Have you published any studies about this treatment?

What About Home Care?

  • How do I handle home health care?
  • Is my child at special risk for infection?
  • How can I protect my child against infection?
  • What should I do if my child has a fever?
  • Are there any support groups in my area?
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