Your Child Is In Remission

Your child has reached remission.After treatment for neuroblastoma is over, the main concerns for most families are the immediate and long-term effects of treatment, and concerns about possible recurrence of the tumor.

It’s very understandable that because it’s over with, you just want to move on, and put neuroblastoma behind you. By all means do, but remember follow-up care is very important.

After treatment, the doctor will likely order follow-up tests, which may include lab tests and imaging tests (MIBG scans, PET scans, ultrasound, CT scans, and/or MRI scans) to see if there is any tumor remaining. The tests done will depend on the risk group and the size and location of the tumor.

Because there is a chance that the cancer may return after initial treatment, it is very important to keep all follow-up appointments and to report any new symptoms to your child’s doctor right away.

Late effects are health issues that neuroblastoma patients can develop after treatments have ended. Common late effects of neuroblastoma include learning issues, vision problems, growth and developmental delays, developmental problems, seizures, headaches as well as loss of function in certain organs. The risk of developing late effects depends on what specific drugs were used during treatment, the dose of those drugs and the child’s age during treatment.

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