Jonah DeLang will be 2 on September 5th of this year. He was diagnosed with stage IV neuroblastoma the week before Christmas of 2014, at the age of 15 months. Up until diagnosis he was meeting or exceeding all of his developmental milestones. As a newborn Jonah showed an incredible amount of alertness. The doctors and nurses all commented on how they couldn't believe how attentive he was to his surroundings. Not too long before diagnosis he had begun to walk...rather, run everywhere. He was enjoying his new found freedom. He was very mischievous spurred on by insatiable curiosity. It was all we as parents could do to keep up with him. He had an incredible sense of humor and loved to play with people. In the month prior to diagnosis his belly started to grow in size and his appetite was almost non existent. Other than his belly and appetite, Jonah had no other symptoms other than occasional, unexplained fevers. He is currently in treatment receiving antibody therapy. At this time he is NED (no evidence of disease) and will receive scans every 3 months. Jonah has recently learned how to feed himself again. He has also learned how to walk again. He has begun to take numerous steps on his own and climbing stairs and furniture. Jonah is getting back to that mischievous and curious little boy that he once was. He shows strength, resiliency, and courage on a daily basis. The medical staff is always astounded by his strength. We still have a long road ahead of us, but we are cautiously optimistic that with his strength and willfulness, he will win his fight against neuroblastoma.
You can follow his journey on Facebook: www.facebook.com/hopeforjonah?fref=ts